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hurts_so_good

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Dopiest responses to CH
Oct 7^th, 2008 at 10:38pm

So what's the dumbest thing someone's said to you when you're in cluster mode?

Stop eating cheese? Go to bed earlier? Just pull the curtains and have a wee lie down? Stop drinking those Red Bulls and you'll be alright?

And so it goes on. Most times I don't even tell people I've got CH anymore, cos they just don't get it. It's easier just to say I've got a migraine to stop the stupid questions.

Even some of the people I love think I'm inventing it, which makes me so angry. They've never run headlong to the fridge at 3am in the morning to find an egg to stick into your eye socket.

Is the word "headache" the killer? When you mention that do they think you're a fake?

Anyway, what's the dopiest thing ever said to you when you mention CH?

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thebbz Ex Member	Re: Dopiest responses to CH Reply #1 - Oct 7^th, 2008 at 10:45pm This one came from a neuro: "take an aspirin and drink a coke". I dont see him anymore. Horse doctor thebb
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Pixie-elf CH.com Hall of Famer Offline I've tried the rest, and busting is the best! Posts: 517 Beaumont,Tx Gender:	Re: Dopiest responses to CH Reply #2 - Oct 7^th, 2008 at 11:11pm "Go back to your hotel, lay down, turn the lights off, take the phone off of the hook, and just relax! Hopefully that'll nip this in the bud!" ...That's what I was told after being discharged from an ER. My family repeated it when I had my next shadow and we all laughed at the absurdity of it. XD
Back to top	As far as I'm concerned, cluster busting has been the best treatment I've tried. No migraines since I started it, and my hits have gotten so much better. Wanna know more? Multimedia File Viewing and Clickable Links are available for Registered Members only!! You need to or It's saved my life. IP Logged

hurts_so_good

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Re: Dopiest responses to CH
Reply #3 - Oct 7^th, 2008 at 11:20pm

This has the makings of a good thread!

Mind you, there's some understanding out there. One time when I was in cluster in the office I sent a friend out to buy me a facecloth.

He came back with a facecloth and - without asking - a bag of frozen peas. They were half-boiled with eye-socket heat by the time I left the office that night...which saved on cooking time when I got home...

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ClusterChuck

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The BEAST rises again,
and again, and again,
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Re: Dopiest responses to CH
Reply #4 - Oct 7^th, 2008 at 11:53pm

Ah, this thread brings to mind two different responses, at widely different times.

The first was when I first started having clusters, 29 years ago. I had been admitted to a teaching hospital, and they observed many hits during the two weeks they had me there. The head neurologist came in and told me: "No one can have the pain you are "pretending" to have, without something showing up on the tests." (I was transfered to the psychiatric ward, where I was kept for three months, till I was "cured" {the cycle ended})

The next dumb remark, was many years later, after I had been properly diagnosed, told to me by my darling Mother! (As a former hair stylist) She told me that if I cut my hair (it was long, and in a pony tail at the time) AND if my wife and I stopped going to those nudist places, my headaches would stop!

So there is the cure! Keep your clothes on, and your hair short!

Chuck

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Skyhawk5

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Re: Dopiest responses to CH
Reply #5 - Oct 8^th, 2008 at 1:16am

Just today and old friend called to check on me after we talked last week about me being in cycle with CH. I told him I haven't been getting much sleep lately and avoid sedating myself because I need to respond quickly to a wakeup CH.

He said, "You know what you need is two big shots of Jack.". No, I can't even smell alcohol I said. "Oh then you just need a big fat joint." Kind of makes you want to snap someones big fat joint but bite my lip and thanks for the call. Gotta love em.

Brother said you have CH because you took LSD. Now it stops it!!!!!

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Just Plain Carl CH.com Old Timer Offline IT IS WHAT IT IS Posts: 449 Royal Oak, Michigan Gender:	Re: Dopiest responses to CH Reply #6 - Oct 8^th, 2008 at 4:57am ""yeah, I get headaches too""
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shelticon2

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Re: Dopiest responses to CH
Reply #7 - Oct 8^th, 2008 at 7:15am

EVERYONE has a cure the these things. Now , they are only trying to help, so you thank them for their advise and move on.

My mother on the other hand, read in a magazine somewhere that if you eat raisins everyday that you will not get headaches. I thanked her for her advice and moved on. She however, wouldn't let it go. Every time I saw her, she insisted I need to try it. Even after I explained to her that all 5 of my doctors were highly educated and well respected she just kept on...

Moms you gotta love em... it's the law

Jim

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Guiseppi CH.com Moderator CH.com Alumnus Offline San Diego to Florida 05-16-2011 Posts: 12063 SAN DIEGO, CALIFORNIA USA Gender:	Re: Dopiest responses to CH Reply #8 - Oct 8^th, 2008 at 8:42am Moms you gotta love em... it's the law Jim No one loves you as much...or means as well as mommies!!! "You just have tooo much stress in your life, stop worrying about stuff and give up coffee!" Guiseppi
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Redrum Ex Member	Re: Dopiest responses to CH Reply #9 - Oct 8^th, 2008 at 9:34am I had a Dr. tell me it was only allergies and I should eat bran muffins with local honey twice a day.
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AussieBrian CH.com Hall of Famer Offline CH - It's all in your head! Posts: 3851 Cairns, Qld, Australia Gender:	Re: Dopiest responses to CH Reply #10 - Oct 8^th, 2008 at 9:43am It's all in your head.
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Jeannie CH.com Sponsor Offline Live, Laugh, Love.... Posts: 2333 St Louis, Missouri Gender:	Re: Dopiest responses to CH Reply #11 - Oct 8^th, 2008 at 9:45am " If you stop worrying about it maybe you won't get one!" This from my well meaning husband. He tries! Jeannie
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sandie99

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Re: Dopiest responses to CH
Reply #12 - Oct 8^th, 2008 at 9:58am

"She's imagining them" by my aunt. I'd like to hear if she said the very same thing to her colleague, who also has ch! Grin

(Hmmm, I have her email addy now, I could write and ask. Wink

)

My mother's "cure": have a donut.
A classic! Grin

And believe me, I sure tried that one! Too bad, it doesn't work (at least, not for me...)

Jim, you can tell your mother that another clusterhead eats a lot of raisins - and still gets ch! So it doesn't work for me; I don't know about the rest of us. But I do love those raisins... It would be great to tell a neuro that raisins keep ch away instead of the meds they wanted me to take! Grin

Sanna

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« Last Edit: Oct 8^th, 2008 at 9:59am by sandie99 »

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BarbaraD

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Hugs to ya

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Re: Dopiest responses to CH
Reply #13 - Oct 8^th, 2008 at 4:08pm

It's only a freakiing headache - what's the big deal?

There's no way your mom can hurt THAT bad - she just wants you to feel sorry for her! (This from an RN daughter-in-law from Hell who works for a pain management neuro and SHOULD know something - I'm now sitting on my hands!!!!)

Mom, WHY can't they give you something? (This from idiot son who listens to daughter-in-law from hell!)

Breathe Granny Breathe (this from darling grandson who brings Granny O2 tank and stands by until she needs a hug). This one is worth waiting for....

Hugs BD

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NeilB CH.com Newbie Offline I Love CH.com! Posts: 22 England Gender:	Re: Dopiest responses to CH Reply #14 - Oct 8^th, 2008 at 4:20pm From my father just the other day: "Listen to Mantovani"
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Linda_Howell CH.com Moderator CH.com Alumnus Offline Do not feed the Moderators Posts: 11927 Santa Maria, Ca. Gender:	Re: Dopiest responses to CH Reply #15 - Oct 8^th, 2008 at 5:52pm Mantovani huh? I wonder if Gershwin would work as well. Stupidest thing? Just relax. I had a HA like that once. I can cure you with Chiropractic.
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Racer1_NC CH.com Moderator CH.com Alumnus Offline "Well, let's go see." Posts: 4417 Lewisville, NC Gender:	Re: Dopiest responses to CH Reply #16 - Oct 8^th, 2008 at 6:15pm Linda_Howell wrote on Oct 8^th, 2008 at 5:52pm: I can cure you with Chiropractic. I've heard that one before.
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mezza

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Re: Dopiest responses to CH
Reply #17 - Oct 8^th, 2008 at 8:05pm

Theres another thread with great responses in the jokes section too. There are some real classics there...

My mom told me to take a St Joesph's baby aspirin ( the orange chewable kind). She said she takes those everytime she has a headache and it goes away....

Apparently my mom still has some bottles of this from who knows how long ago... I hate to break it to her that I haven't seem that at Walgreens in the past 5-10 years.

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Kushka

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Re: Dopiest responses to CH
Reply #18 - Oct 8^th, 2008 at 8:20pm

"Just don't focus on it and try to do something productive. It just gets worse when you focus on it." This from my well-meaning husband.

"Come back to bed and just relax." Again, he means well.

"Try to avoid things that trigger the headaches" - From the ER doc who seems to think I am an idiot who goes around guzzling red wine, chain smoking and eating pounds of chocolate- none of which I do because I have enough attacks without adding fuel to the fire.

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Carlyn

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on my knees Ex Member	Re: Dopiest responses to CH Reply #19 - Oct 8^th, 2008 at 8:35pm diagnosed by neuro after a 2 minute office visit."your depressed" well no $%^& you dumb ^&%$%$&^. that was 5 years ago i have real neuro now.
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FramCire CH.com Alumnus Offline Life like a froward child must be humored a little Posts: 1710 Bolivar, MO USA Gender:	Re: Dopiest responses to CH Reply #20 - Oct 8^th, 2008 at 8:50pm My son came up, kissed me on the head and said "All better?" It wasn't dopey at all, but I thought Id share anyway. For a 4 year old (at the time) it was hard to explain to him what daddy was going through but it makes me smile whenever I remember it.
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Brew

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Re: Dopiest responses to CH
Reply #21 - Oct 8^th, 2008 at 9:07pm

Kushka wrote on Oct 8^th, 2008 at 8:20pm:

From the ER doc who seems to think I am an idiot who goes around guzzling red wine, chain smoking and eating pounds of chocolate- none of which I do because I have enough attacks without adding fuel to the fire.

Not sure, but you may have just alienated about 85-90% of the people here with your first post.

I hope not. I, for one, am not going to take it personally.

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sandie99 CH.com Hall of Famer Offline Wish it, dream it, do it - inspite the pain! Posts: 11975 Finland Gender:	Re: Dopiest responses to CH Reply #22 - Oct 9^th, 2008 at 5:38am FramCire wrote on Oct 8^th, 2008 at 8:50pm: My son came up, kissed me on the head and said "All better?" That's so sweet! Thank you for sharing that. I love that story. Sanna
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flipperlips CH.com Alumnus Offline Live, Laugh, Love Posts: 935 Mcallen, TX Gender:	Re: Dopiest responses to CH Reply #23 - Oct 9^th, 2008 at 7:53am I'm so guilty of complaining of a bad headache to Phil. I know my headache is nothing compared to what he goes through. Hugs, Jen
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Izzy

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Re: Dopiest responses to CH
Reply #24 - Oct 9^th, 2008 at 5:04pm

hurts_so_good wrote on Oct 7^th, 2008 at 10:38pm:

So what's the dumbest thing someone's said to you when you're in cluster mode?

Stop eating cheese? Go to bed earlier? Just pull the curtains and have a wee lie down? Stop drinking those Red Bulls and you'll be alright?

And so it goes on. Most times I don't even tell people I've got CH anymore, cos they just don't get it. It's easier just to say I've got a migraine to stop the stupid questions.

Even some of the people I love think I'm inventing it, which makes me so angry. They've never run headlong to the fridge at 3am in the morning to find an egg to stick into your eye socket.

Is the word "headache" the killer? When you mention that do they think you're a fake?

Anyway, what's the dopiest thing ever said to you when you mention CH?

Wow. This is so happening to us right now! We don't say headaches or migraines. We're like "He has a brain disease." People shut up. It's just easier. We used to say "Wicked headaches" but people just think he is a sissy that can't handle a migraine. Whatever...the dopiest thing? "Keep taking Advil."

RIGHT...with the light dusting of hellfire on his brain that no amount of silly little "moderate pain reliever" will EVER be able to help, I'll be sure to follow up on that.

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