Mystina,
I know you're worked up on this one for your own reasons. I've learned a lot here at CH.com. I've learned about poor treatment strategies from people who have experienced them. I've learned about effective strategies from those who have lit the way in many instances. I've learned how to fight for the most effective treatment options for me.
Managing CH isn't easy, as it isn't for any health problem. It is hard work. In this thread the originator wanted an easy answer. This was evidenced by his dismissal of almost any input that required interaction beyond interaction with his keyboard. I don't blame him, what he's going through is surely hell. But, it's a hell that many posters on this thread are keenly aware of.
First, his present situation is not likely to lead to a rational approach to his being his own advocate for care. Second, at his age, he will be hesitant to argue his care with a friend of his father's as his caregiver.
More complication.
But, there are strong feelings on this subject. And, believe it our not, this subject has evoked much more careful feedback than I've seen in the past. I actually thought most people were pretty sensitive to his situation. But you are mistaken if you think this is "the giant hug" cluster headache site.
People come here to learn. People come here for support. Learning and support is often a result of people disagreeing -- even with new arrivals.
There is no easy answer. If you feel a special kinship with the originator, then good for you. Your statements:
"I'm upset because this whole board, except a few people, has completely disapointed me. I'm sad about it. I thought the board was better than this."
, or
"It's our responsibility to be kind to anyone, no matter what their choice of treatment is. "
.....well, pixie, you'll probably feel that way again here.
My main issue with the originator is this, he states:
"if i am presented with two options the first being walk and do things i normally can do, as well as giving me relief from my CH. the second option is walk slow and hunched over with debilitating pain and a CH attack that is extreamly painful i think like most people i would take option number one."
He's asking us to agree with him, or at the very least dismiss any of the feedback given, that narcotics are the only answer for him. Sorry, but I don't think you're going to find everyone saying, "yeah dude, you're right." to that.
Then he does it again, later he says:
"so it is not hard to put two and two together and see that CH and chronic back pain can be treated with the same medication it is best to do so."
Again, he's asking us to agree with him that the meds he now states are for his chronic pain are effective for CH. Again, I don't think you'll find people agreeing with that.
Managing cluster headache is hard, hard work. Overlay another condition and it complicates it further. We've seen some really tragic situations go through this board - some with really tragic outcomes, and others with miracles of life-changing dimensions. All of them faced hard work to find their answer.
Scott