Author |
Topic: 5-HT activity in Kudzu (Read 32695 times) |
|
godsjoy777
New Board Veteran
HIS name is above clusters
 
Gender: 
Posts: 122
|
 |
Re: 5-HT activity in Kudzu
« Reply #150 on: Feb 24th, 2005, 1:05am » |
 Quote  Modify
|
Thanks Nani......Thanks to you all for the help.....Now....if I would just get my stubborn butt to bed.....I am sooooo exhausted......but I was hit soooooooo hard last night I guess subconsiously I'm fighting sleep.....
My wonderful, precious husband.....conks out at 9:00pm like clockwork.....I, on the otherhand get so aprehensive during cluster season.....working on month 6......
Bless you guys,
Karen
|
|
 IP Logged |
|
|
|
PaulL
New Board Newbie
Gender: 
Posts: 40
|
|
Re: 5-HT activity in Kudzu
« Reply #151 on: Feb 24th, 2005, 10:20am » |
Quote Modify
|
My headaches stopped about a month ago but lately I've been getting some very unpleasant shadows at the same time that my headaches came. So I've started using kudzu for the last two days and it seems to have stopped the shadows quite nicely. It's not a test with the real CHs but it's suggestive and it's making life better. I'd tried the kudzu about a week ago and the shadows went away. Thinking that it was just the end of the episode I stopped. Guess there's a long tail to this one.
I'm taking one Planetary Formulas 750 mg tablet at night to stop my 6am shadows.
|
|
IP Logged |
|
|
|
BlueMeanie
CH.com Alumnus
New Board Hall of Famer
Gender:
Posts: 1178
|
|
Re: 5-HT activity in Kudzu
« Reply #152 on: Feb 24th, 2005, 10:59am » |
Quote Modify
|
Has anyone who fits the below criteria also received postive results from this KUDZU stuff ?
(1) Has naturally occuring Cluster Headaches NOT caused by surgerys, brain anurysyms, car wrecks and/or accidents etc. ?
(2) That ONLY gets Cluster Headaches and NOT Migraines, CPH, Icepicks and other types of headaches ?
(3) That is Episodic and NOT Chronic ?
(4) In the middle or PEAK of your cycle ?
I'm asking because I'm a true believer that there are some commonalities in treatments associated with the type of situation you get your Clusters.
Congrats to those that it is working. Glad to hear you're PF and hope that KUDZU stuff keeps working for you.
|
|
IP Logged |
|
|
|
nani
CH.com Alumnus
New Board Hall of Famer
Got kudzu?
Gender:
Posts: 7953
|
|
Re: 5-HT activity in Kudzu
« Reply #153 on: Feb 24th, 2005, 12:20pm » |
Quote Modify
|
To clarify....I had episodic CH for 26 years before my brain aneurysm.
I think Shiraj is episodic and in what should be the peak of his cycle.
|
|
IP Logged |
Others may come and go, but MY power is MINE.
|
|
|
sandie99
New Board Hall of Famer
Wish it, dream it, do it - inspite the pain!
Gender:
Posts: 10429
|
|
Re: 5-HT activity in Kudzu
« Reply #154 on: Feb 24th, 2005, 12:44pm » |
Quote Modify
|
started kudzu today.... 
|
|
IP Logged |
CH happends, Live anyway! PF days to us all!
"Do what you can and let God take care of the rest. Leave your heart wide open and always wish for the best" (Sanna Hillu)
"No matter how far out your dreams are, it's possible" (Marketa Irglova)
|
|
|
clarence
CH.com Alumnus
New Board Hall of Famer
Wake up
Gender:
Posts: 1020
|
|
Re: 5-HT activity in Kudzu
« Reply #155 on: Feb 24th, 2005, 1:25pm » |
Quote Modify
|
I am a natural clusterhead. No trauma here (except that of looking in the mirror every day. I am episodic. About my cycle, this one has been a rollercoaster, so who the hell knows whether it is peak or not. I can tell you that my head hurt pretty bad, and then it felt better. I think the Kudzu has helped a lot. Other types of headaches: I have never been "diagnosed" with any, but I do get headaches that are dual sided and center in the forehead, raher than oned-sided in the eye (though, unfortunately, I get those too.) I would call them migraines.
Now that that is settled...
I am shadowing a bit in the mornings and evenings, about the times I usually get hit. The shadows aren't too bad, and don't last too long. Also, I feel the "trigeminal activity" that some have reported. What that is I don't know, I would say very light shadows. I just "feel" the right side of my head.
All that said, there has been a marked improvement for me since I started taking the kudzu. Today is Day 8. Yesterday, I moved from 2 pills/day to 3 pills. I am on the Solaray: http://www.nutraceutical.com/search/view_product.cfm?product_index=3680
Hope it is going well for all,
Casey
|
|
IP Logged |
NY Yankees Suck!!!
"Bart, don't make fun of Grad students. They just made a terrible life decision," Marge Simpson
Where I live: http://rainfallsoneveryone.com
|
|
|
nani
CH.com Alumnus
New Board Hall of Famer
Got kudzu?
Gender:
Posts: 7953
|
|
Re: 5-HT activity in Kudzu
« Reply #156 on: Feb 24th, 2005, 2:12pm » |
Quote Modify
|
on Feb 24th, 2005, 12:44pm, sandie99 wrote:| started kudzu today.... |
|
Yeah...you go girl! I think you'll find some relief, Sandie. I really do!
Casey, I'm glad you're back to getting improvement.
Get in the boat, people. The destination is PF land!
|
|
IP Logged |
Others may come and go, but MY power is MINE.
|
|
|
godsjoy
New Board Junior
I love YaBB 1G - SP1!
Gender:
Posts: 51
|
|
Re: 5-HT activity in Kudzu
« Reply #157 on: Feb 24th, 2005, 2:24pm » |
Quote Modify
|
I've been diagnosed episodic CH-been that way for 15 years with one year reprieve.....I usually have a cycle the 10th month after the last one finishes....Unfortunately this is becomming the longest of record yet....going on the 6th month....
I occasionally get migraines and some sinus and tension headaches too....I definately know the difference.....I had such a bad night the other night that my co-worker tried to lift the skin back up on my right eye(my cluster side)...She said it looked like I had a stroke or something....ONE HARD NIGHT WITHOUT O2.....Got some now....phew!!!!! And I started again this morning with the Kudzu....I am taking 900mgs this am....and plan to take the same this evening as the 750mg am and pm was not doing much....but of course I only got to take it for a day or so......I'm just anxious....can you tell? 
OK.....I'll keep going and let you know how it goes....I also am taking soloray 150mgs....but much more than one or 2 pills...
Bless y'all,
Karen
|
|
IP Logged |
Think as one of action...
Act as one of thought
and pray...pray....pray...
|
|
|
ozzy
New Board Old Timer
As I Am
Gender:
Posts: 485
|
|
Re: 5-HT activity in Kudzu
« Reply #158 on: Feb 24th, 2005, 2:41pm » |
Quote Modify
|
Blue,
I was formerly a natural episodic CHer for 14 years, then two years ago I became chronic.
Ozzy
|
|
IP Logged |
|
|
|
BlueMeanie
CH.com Alumnus
New Board Hall of Famer
Gender:
Posts: 1178
|
|
Re: 5-HT activity in Kudzu
« Reply #159 on: Feb 24th, 2005, 3:55pm » |
Quote Modify
|
I'm really getting excited about what you all are saying here. Sorry if I ask alot of tough questions, but I'm a big skeptic when it comes to Clusters if you can't tell. 
Hope it works for you too Karen. Please keep us posted.
One more question: If this stuff works like a Triptan and you're not suppose to take Triptans, are you flurting with disaster and have you checked with your doctor about it ? It just seems that if your constantly contricting those blood vessels it may not be a good thing.
|
|
IP Logged |
|
|
|
LeLimey
CH.com Alumnus
New Board Hall of Famer
OUCH-US - Less "ME" and more "WE"
Gender:
Posts: 11720
|
|
Re: 5-HT activity in Kudzu
« Reply #160 on: Feb 24th, 2005, 5:27pm » |
Quote Modify
|
Having just had a day from hell the nicest thing happend. I got an email saying
"Your Order #661331 placed with VitaCost Online Store has been shipped to the consolidation center, where it is being prepared for international shipping."
NOTHING has helped today. I'd have eaten ground glass earlier if someone told me they thought it would have helped.
|
|
IP Logged |
The arsehole I'm divorcing needs to get a life and stop stalking mine
|
|
|
toolong
New Board Veteran
Looking for an answer
Gender:
Posts: 183
|
|
Re: 5-HT activity in Kudzu
« Reply #161 on: Feb 24th, 2005, 6:06pm » |
Quote Modify
|
[b][/b]Holy cow!!What a thread!!I just started Kudzu.150 X 2 a day,Tuesday.Going to give it a chance.Still having some shadows,but no CH kip 5 or above.Saying a little prayer(wait make that a big Prayer) it works.I'll let everyone know how it works out. David
|
|
IP Logged |
Hey,watch this!I saw it on a cartoon and I think it might work!
|
|
|
Mr. Happy
CH.com Alumnus
New Board Hall of Famer
If I can do it, it ain't art.
  
Gender:
Posts: 2217
|
|
Re: 5-HT activity in Kudzu
« Reply #162 on: Feb 24th, 2005, 6:44pm » |
Quote Modify
|
on Feb 24th, 2005, 3:55pm, BlueMeanie wrote:| I'm a big skeptic when it comes to Clusters if you can't tell. |
|
Like you and your balding pate have a corner on skepticism around here???
on Feb 24th, 2005, 3:55pm, BlueMeanie wrote:| If this stuff works like a Triptan and you're not suppose to take Triptans, are you flurting with disaster and have you checked with your doctor about it ? |
|
Actually, none of us know anything. Mahatma Floridian is the master guru of info at this point, and he's the one that stated they may "trip" over one another......possibly.....kinda.
Nobody has any idea what will happen if mixed. No use asking a doc or pharmacist. They have no clue. We're in uncharted territory.
This whole thing is like a Star Trek show, Kudzu style. Damned interesting, too. No telling how much Placebo Effect is involved here.......
Once we dig out of this filthy snowstorm tomorrow, maybe I'll chaw down a fistful of Kuzu pills, and do a snort of trex. Beta testing has always interested me, but I want to make sure the ambulance can get me the hell out of this place in case I've "tripped" over an important detail.
Exciting times,
RJ
|
|
IP Logged |
May those who don't want any
Have memories of never getting any.
|
|
|
Sandy_C
CH.com Alumnus
New Board Hall of Famer
Burn that bra!
Gender:
Posts: 2585
|
|
Re: 5-HT activity in Kudzu
« Reply #163 on: Feb 24th, 2005, 7:36pm » |
Quote Modify
|
Hello - I'm an old newbie! Found this site 5 years ago when I first experienced CH and thought I was going to die. This forum was a Godsend. After 4 months of CH, then only tiny, very manageable CH every now and then for the next 5 years. Until now. So, I'm back, and I never should have left you guys. Found this forum about Kudzu and got excited. Read the posts this afternoon at work, ran to my local health food store and picked up a bottle of Nature's Way Kudzu Root - 613mg capsules (same as Mr. Happy). Came home and took two right away, along with one B complex and one White Willow Bark (400mg). The guy at the store recommended Willow Bark as an asprin substitute to take twice a day as a possible preventative. Hey! I'll try anything at this point.
I am female, aged 58, and apparently an episodic, but my episodes seem very unusual in that I had severe CH (head bangers) five years ago, then maybe k3 or k4 now and then, and now back to the head bangers. I take Imitrex tablets only when I know the CH is going to be a doozy, and I've learned to tell by the speed at which the thing comes on. Other than that, I take 3 extra strength Excedrin, ice packs, and tons of water, and, of course, those aren't working very well. I am menopausal, not taking any HRT. My CH start in the evenings - right around dinner time - great for a diet - maybe I'll lose weight. I will have a mild one at around 6:00, then around 10:00 a 7 or 8. Last night, it was reversed, had the biggie at 6:30, and it finally eased enough so I could fall asleep around 11:00, but I've had shadows all day, and right now am having about a 3.
I'm excited to give Kudzu a try and will do my best to keep a diary of symptoms. Wish me luck .
Keep the faith and be PF
|
|
IP Logged |
Lean on me when you're not strong
And I'll be your friend
I'll help you carry on
For it won't be long
Till I'm gonna need
Somebody to lean on
|
|
|
clarence
CH.com Alumnus
New Board Hall of Famer
Wake up
Gender:
Posts: 1020
|
|
Re: 5-HT activity in Kudzu
« Reply #164 on: Feb 24th, 2005, 7:48pm » |
Quote Modify
|
Sandy, sorry its hitting you hard, but glad you are in for the "trial." I know that you read all the posts here. I would just say to think about it before taking the imitrex in conjunction with the Kud. At least until Mr. Happy trys it out tomorrow and reports. If he reports from home, we might be ok, if from the hospital, we will know...
Kidding aside, I really hope it works out for you. Sorry your here, but welcome aboard.
Casey
|
|
IP Logged |
NY Yankees Suck!!!
"Bart, don't make fun of Grad students. They just made a terrible life decision," Marge Simpson
Where I live: http://rainfallsoneveryone.com
|
|
|
Kris_in_SJ
New Board Hall of Famer
There's no place like home.
Gender:
Posts: 1539
|
|
Re: 5-HT activity in Kudzu
« Reply #165 on: Feb 24th, 2005, 8:27pm » |
Quote Modify
|
I've been taking volumes of notes off this thread!
Since I'm a 4-5 yr cycler and just finished this past summer, it will be (I hope) a while yet. But, i'ts so exciting to see my chronic friends finally getting relief! My biggest hope is that our episodic friends will keep posting their results, and (of course) that the results for them will also be positive.
Perhaps we should all move south and start a "cluster colony"? As a group, we could probably help with the threat of Kudzu invasion.
Kris
|
|
IP Logged |
I'm a small woman in small town being chased by a VERY BIG BEAST!
|
|
|
ErikY
New Board Newbie
I love YaBB 1G - SP1!
Posts: 23
|
|
Re: 5-HT activity in Kudzu
« Reply #166 on: Feb 24th, 2005, 8:54pm » |
Quote Modify
|
Since I upped the dose of the Nature's way to 3 pills, 3 times per day, no hits for me.
A few shadows here and there, but no actual hits.
I should mention that I have also upped my water intake big time and water is a big preventive for me.
Whatever it has been, over 72 hours without a hit. My cycle definatley is not over because I still feel activity in my eye and temple that I dont get when i am not getting the HA's.
|
|
IP Logged |
|
|
|
TxBasslady
CH.com Alumnus
New Board Hall of Famer
Bass fishin' is a h00t It's the catchin' that sux
Gender:
Posts: 3201
|
|
Re: 5-HT activity in Kudzu
« Reply #167 on: Feb 24th, 2005, 9:18pm » |
Quote Modify
|
Oh well, guess I've joined the crowd. Went today and picked up the Kudzu...
I finished a Pred taper on the 25th of January. I had 42 days of total PF time. However, 2 nights ago, the bastard came back. I'm sick of this shit! I hate these fuckin' ha's and the way they make me feel.
Sure hope the K works....if not, I may take the route of BobW and CB.
Good luck all,
Jean
|
|
IP Logged |
How lucky I am... to have known someone who was so hard to say goodbye too.
Take a kid fishin
www.takemefishin.org
I adopted a Vietnam POW/MIA from El Paso, Texas! 
|
|
|
PaulL
New Board Newbie
Gender:
Posts: 40
|
|
Re: 5-HT activity in Kudzu
« Reply #168 on: Feb 24th, 2005, 9:34pm » |
Quote Modify
|
RJ,
I once had a conversation with a top neuorologist at Mass General Hospital about how they go about testing new medication for migraine and cluster. He said migraine tests are very difficult since there is a 50% placebo effect so you are never quite sure if the medication really helps. On the other hand, cluster is easy since the placebo effect is 0%. Based on that observation and lots of personal experience I think that Nani and all the rest are getting genuine relief from the kudzu. The only real question at this point is whether it only works for a small fraction of CH sufferers, as is true of so many meds, or if it works for lots of people, like Imitrex. Let's hope it's as effective as Imitrex, but only time and experience will tell.
Maybe the webmaster can add kudzu to the medication survey so that we can learn how effective it is as more people take it.
|
|
IP Logged |
|
|
|
nani
CH.com Alumnus
New Board Hall of Famer
Got kudzu?
Gender:
Posts: 7953
|
|
Re: 5-HT activity in Kudzu
« Reply #169 on: Feb 25th, 2005, 12:03am » |
Quote Modify
|
Oh goody...it's great to see so many on board. Looks like we got some beta testing going on. This is really exciting...I hope it works as well for everyone as it has for me!!
|
|
IP Logged |
Others may come and go, but MY power is MINE.
|
|
|
unsolved1
Guest
|
|
Re: 5-HT activity in Kudzu
« Reply #170 on: Feb 25th, 2005, 12:10am » |
Quote Modify
 Remove
|
Interesting topic. So how many are trying this and how many people are benefiting from it ?? Should I be running to buy this yet ?
Unsolved
|
|
IP Logged |
|
|
|
Kevin_M
CH.com Alumnus
New Board Hall of Famer
withered branches grow green again.
Gender:
Posts: 6184
|
|
Re: 5-HT activity in Kudzu
« Reply #171 on: Feb 25th, 2005, 12:29am » |
Quote Modify
|
on Feb 24th, 2005, 3:55pm, BlueMeanie wrote:| Sorry if I ask alot of tough questions, |
|
Good ones Blue.
|
|
IP Logged |
|
|
|
sandie99
New Board Hall of Famer
Wish it, dream it, do it - inspite the pain!
Gender:
Posts: 10429
|
|
Re: 5-HT activity in Kudzu
« Reply #172 on: Feb 25th, 2005, 1:12am » |
Quote Modify
|
I started kudzu yesterday and so far.... NO CH! And no shadows.
|
|
IP Logged |
CH happends, Live anyway! PF days to us all!
"Do what you can and let God take care of the rest. Leave your heart wide open and always wish for the best" (Sanna Hillu)
"No matter how far out your dreams are, it's possible" (Marketa Irglova)
|
|
|
magman
New Board Newbie
I love YaBB 1G - SP1!
Gender:
Posts: 6
|
|
Re: 5-HT activity in Kudzu
« Reply #173 on: Feb 25th, 2005, 5:10am » |
Quote Modify
|
Floridian,
Thank you for all of the research and compilation of facts presented here and in your online document.
Seeing the interest, number of people involved in this 'beta-test', and the need to track the results, I have added kudzu to CHATS under 'Alternative Meds Treatment'.
I urge all those now 'beta-testing' kudzu to use the CHATS system to track your progress. If you do not have a login or are having difficulties with your current CHATS user-id/password, please email me at chats-beta@kdlltd.com. I will provide a toll-free number for CHATS assistance in my reply email message.
C.H.A.T.S. Login
Warm regards,
-dan
PS Randy....your chats login was just tested and confirmed. Email on the way with particualrs.
|
|
IP Logged |
|
|
|
nani
CH.com Alumnus
New Board Hall of Famer
Got kudzu?
Gender:
Posts: 7953
|
|
Re: 5-HT activity in Kudzu
« Reply #174 on: Feb 25th, 2005, 9:28am » |
Quote Modify
|
Thanks, Dan!! OK- I'm going to start doing this asap...everyone else in? BTW...One shadow yesterday and a tension HA.
|
|
IP Logged |
Others may come and go, but MY power is MINE.
|
|
|
|
|
|
Home
Help
Search
Members
Member Map
Login
Register
Reply
Notify of replies
Send Topic
Print
test rss