Nope I’m not speaking for Dr. Shevel, I’m quoting him. As I recall him saying to me that, “I can give you meds but if we do the ligation to artery your cluster headache will be gone for good”
Just because you say I’m not cured does that means that I’m not cured?
What about the many other people that were cluster sufferers and oddly enough all of their attacks stopped after their arterial ligation was done.
If I’m Not CURED then please explain why I’m not being woken up at night with a feeling that the skin in my nose is been peeled out, and also explain why that when I was in the one of my cluster cycles of between 5 to 7 attacks a day, I Then one day, had my artery ligated and ever since then I am Living my life again? The correct saying in our case is “You don’t know what you have lost until you get everything back”
@ 10 short; You don’t need to know me, all you need to know is that for 7 years I was living with the cluster demon just like you are now, and now i DONT, I’m not on any meds, no oxygen no Imigran, Just living life drinking Ice cold beer under the hot African sun, Cured.
Why is it unable to conceive that just maybe there is a cure (for at least some of us, if not for all) and the cure is now here, waiting for you? Admittedly in the early stages but It is here none the less.
Perhaps you, clusterman59, haven’t heard from Dr. Shevel, the reason only he can answer, but seeing as you asked me all I can do is guess, and my guess would be, probably because he is too busy helping people who want help. And he can’t be asked to arguing with people who have an itch that they will never even want to know how to scratch.

@Seaworthy, I see all the Anchors are up in arms.

@10 short of a good time: I know what Danny was trying to tell you, because it’s an obvious guess. and I had a chat with him (I wasn’t sure if you were trying to ask me a trick question at first so I thought I’d answer it all the same.) he sure as hell wasn’t trying to make you dependant on oxygen or meds etc.

(this is directly from Danny to me: Aaah, my dear friends at Cluster Headaches .com. They're a tough bunch! Say Hi to Bob Phalow for me if he's still around. Some call him Boss, other's call him Boob. Haha.) thats @ old harry potter the resident side-kick.

Ryan

Well Said Brew!! See ya later Danny Boy!

Hey Ryan you should remember what you already posted....

"Firstly I don’t know who Danny is But my Name is Ryan,"

If you don't know who danny is then why are you quoting him??????

TIME LINE:

This was posted on the 19th November:
"Firstly I don’t know who Danny is But my Name is Ryan,"

Then I contacted Dr.Shevel and asked about Danny... and then I got Danny's email address and conversed with him then I posted the following on the 20 november

Its called a time-line, It's not rocket science.

Cluster cured wrote on Nov 20^th, 2012 at 3:32pm:


@Brew : I can go with that for now

I’ve uploaded a video on youTube as proof I am not Danny (cluster headache cure by Dr. Shevel)

So will everybody that gets cured by Dr. Shevel going to be Danny or just treated like Danny? What am I up to 59er?- (you ten short tho!) It’s not like I’m trying to sell something, or anything for that matter, by the way I like your jewellery business, have you got a polished healing stone/crystal that cures hangovers or even just one that will cure Beer breath?

You my 59er friend will probably never hear from Dr. Shevel, but what you can do (for you and your loved ones around you) is to stop seeing yourself as a victim, and keep your two eyes out for the "American Journal of Maxillo Facial Surgery" (for proof) that has just accepted as a study from Dr. Shevel that he has done on the procedure for cluster headaches, pending a few suggested changes. When the article is published, Danny will post it to Ch.com.
No doubt it will It'll have no effect except to generate a round of mudslinging, but he'll have done his duty by posting it. (another thing i chatted to Danny about.)
P.S. if you really have read enough from me, 69er minus 10 is,,,, click on ignore, it’s a little icon on the left hand side of the screen.
my reasoning is that if I can help just ONE person... I’ll be done. otherwise if you want to yawn at a cure... bye some EXPENSIVE hand polished stone (Not).. or keep chating to me... your call:) Fire me if you want, clown.

Cluster cured wrote on Nov 29^th, 2012 at 3:35pm:

   Isn't this unacceptable by the standards set forth?  Locked would work.

                 Potter

The Dr you are talking about his name is Elliott shevel of the headache clinic for migraine?

dannyboy wrote on Mar 26^th, 2007 at 9:13am:


   Do ya s'pose it's coincidence?

                    Potter

If i had heard this treatment from a credible source in the beginning i too would be interested in learning more about it.
However until that source presents itself i would  have to take this treatment and add it to the list of many other possible treatments and treat it as if a  grain of salt.....

Seaworthy, thanks for changing the subject.
91 replies spread over 4 pages is a bit much for a non-subject.

Patriots=Division Champs !!!!

Quote:


Like Hi-Jacking a garbage truck.

Well there we all have it.

No problem Gregg, so even though I’m now cured, I will visit this site occasionally even if it is just to update you on how I am doing. I'm sorry for my arrogance I was once very jaded... Old habits die hard.

@Mike NZ: thank you for the asking your questions.

Go it, BarbB, I'm Laughing My Arteries Out!

Take care, may you all live pain free.

You don’t know what you have lost until you get it all back!

Ryan

[quote author=262930363120371A03372020450 link=1353155012/75#75 date=1354126637]Nope I’m not speaking for Dr. Shevel, I’m quoting him. As I recall him saying to me that, “”

Although the previous threads here are relatively old, I have read them all with great interest. I am a newbie to the site but comment as my husband is a CH sufferer, we also live in SA and he has been to Shevel for the ligation treatment. I am very happy for Cluster Headache CURE that he found relief in the treatment he received (unfortunately in my husband's case, he was not so fortunate).
In retrospect, I would have done FAR more research than that which we did pre-treatment and even now would warn anyone considering the treatment, to SERIOUSLY not consider it.  Desperation can lead to silly decisions and that is the case with us.  Not only have we spent thousands of rands on having the treatment done - hence I have highlighted the sentence posted in Cluster Headache CURE's post above - my husband was told the precise same thing - seems to be a pitch in selling the procedure to possible candidates.
To cut a rather long story short, not only did the first ligation procedure not work (involved one cut on either side at the back of his head, cuts on each temple, cut above the right eyebrow, as well as cutting inside the mouth), he went back to Shevel as the CH did not cease. And he went back twice more after that - having two separate procedures done in one day. Botox injections did not work.
Needless to say, after all the thousands of rands spent on having the procedure done, he still suffers from CH and we are STILL spending wheelbarrows full of money on medication.
We don't live in the city Shevel is in and have to spend a fortune on transport getting to the clinic. Granted, he has footed the bill for two airplane trips to Johannesburg, but I don't feel in the least indebted to him for doing so.
So......what is the epilogue to this absolute nightmare story?  Shevel's advice is that my husband is to return to the clinic AGAIN as he is 'willing to operate'. But we have to pay our own way to Johannesburg and of course if the procedure doesn't work - fifth time around - well, what can Shevel do - at least he has loads of desperate people like us who are willing to do whatever it takes to perhaps have relief from this headache from hell.
My question is - cut our losses and have respite in the knowledge that by posting on forums such as these, we may warn others not to go the same route we did, approach a medical board to attempt to recoup some damages, return for a fifth procedure in the hope that this time around, something works and the CH is aborted for good?