I do understand...! but could you do the night shift at least....


Lefty....!

Guiseppi wrote on Feb 11^th, 2009 at 10:04am:


sorry , but i had to laugh awhile over this one, lol.  I had a period of about a year where I kept thinking "maybe it's  all in my head" and I would try so hard to not even think bout headaches. 

I saw a GP (not my regular GP) about my headaches. She referred me to a psychiatrist, because she thought I was depressed (I didn't look so bright). This was after I finished telling her how these headaches wake me up every night, and I hardly get any sleep. Night after night. And she still manages to mix up depression with exhaustion.

The psychiatrist (I did go see him anyway, you just never know) did have one good advice for me: 'You're not depressed. Go see a good neurologist.'

Some of these, if not most, are insane and it amazes me that they are doctors giving out most of the advice!

I remember seeing a neurologist in CA that was supposed to be top notch and his suggestion was to take two exedrin migraine with a big bottle of mountain dew. He said that that always works for his patients... we still laugh about that one.. if only treatment were that easy!

I can also remember all of the neuros either saying to cut out caffeine, drink caffeine or some other idea that was no helpful at all. And many have said that I was depressed... duh.. but that does not cause the headaches!

My last neuro at Jefferson wanted me to try the nasal spray with pepper.. the Sinus Buster I think is what it is called. So after much debate and much pestering, I paid twenty bucks for it and tried it once.. I can not put anything into my nose during a hit without make it ten times worse. So I gave him the bottle at my next appointment and told him to keep it in so many words. He got that message.

It is amazing to read what people suggest, have tried or have heard. I still remember someone on here saying to try snorting hot pepper... I did that and do NOT recommend it at all because it was horrible. Oh the things we do..

Anyways, just wanted to share these. At least we can laugh at what people tell us... most of the time and after we are longer angry at them!

Jill

aj wrote on Feb 11^th, 2009 at 1:09am:


I called my neuro's clinic this morning (wednesday) and asked for an appointment telling her my cycle has started.
The receiptionist says "OK. You can come on next friday (after 10 days) at 10:00 AM"
I called the neuro on his mobile immediately and he asked me to go to him this evening.
God bless the receiptionist..

Lissa wrote on Apr 1^st, 2009 at 7:48pm:


My parents were the same way until Nov. 2004 (several months before I was formally diagnosed with CH by a headache specialist in 2005), when I had about a Kip 8 or Kip 9 attack while I was visiting them. Seeing me in agony, curled up in a fetal ball rocking on the couch for an hour and a half convinced them that something serious was going on.  Then they thought it was possibly sinus problems (since my dad had a history of sinus infections).  I even thought then (from having read a little info on them) that they were CH.  

Oldies but goodies I've heard over the years:

Mom - "well don't think about it and maybe you won't have an attack tonight."

Friend who used to be an evangelical street preacher - "have you tried faith healing?"

Online guitar forum (I've been playing guitar for 30 years), and the same evangelical friend - "have you tried weed?, it does wonders for headaches/migraines"

From the director of an animal shelter I volunteer at before I set her straight - "do you suffer from constipation?.  I have a friend who used to get bad headaches from tensing up her neck muscles while trying to go to the bathroom when she was constipated."  Sheesh!!  

And yes, I've heard the "oh, I get (or I know someone who gets) migraines too."  I usually make it a point to inform people that CH is NOT like migraines.

i think we should pull our resources and wright a book called a thousand and one comments to annoy a clusterhead.

after being hit last week with k9 2 hours before work and shadowing like a maniac my co worker looked at me and said "whats with the miserable face, jesus you put me on a downer" then told him i was having a bad day to wich he replied "put a smile on it cant be that bad"

been told to go to a dark room and if im having an attak and he walks in  then i should leave the room as he didnt want to see it  i laughed my arse off at that one.

another guy in work, "my mate has headaches and he whent to acupuncture theropy and his headaches have gone" on asking what meds he used he told me aspirin.

my wife (bless her cotton socks) told me i wouldnt have an attack as she has banned sharon from the house. got hit that night, on telling my wife she informed me she was sorry but she left the bedroom window open ROFLMAO

mark (now feeling a bit more cheerfull)

I think she's lucky not getting a headache for that remark of hers, especially during a hit like that! 

My kids walk into the room, how ya feeling today mom...take one look see my left eye drroping and say ahhh (they're teenagers..and good ones) and tell me to lay down. 

My boss who knows I suffer tells me I have too much drama....asked me to keep an eye on an account but told me I had to keep my eyes on the account to do that (I had my eyes closed while dealing with the peaking of the cluster at work) 

I went to a chiropracter , my Dr.s husband,and he said my neck was "out" and he would have me fixed up after a few visits, after 2 weeks of no fixinging he said I was the worse case he had seen.
100. apop for that!

Thanks, yes this was years ago!

A few days ago a "friend" who I reconnected with on facebook but haven't seen in years gave me an extremely condescending lecture on how diet soda causes my CH, and that all of my doctors and me are wrong. The only problem with me is too many toxins... It wouldn't have been so annoying if she wasn't so sure of herself. She is someone who I always wondered if she was slightly mentally challenged, but recently she started homeschooling her kids and participating in some sort of network marketing nutrition thing where she thinks ALL health problems are from toxins.